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Resources: Disease Registries

Dr. Terry McGeeney's CEO Report on Disease Registries
Registries are powerful and easy-to-implement tools that can dramatically improve quality of care, especially in relation to chronic disease management. Dr. Terry McGeeney urges every medical practice to immediately take substantial steps toward implementing Registries.

Are you considering taking the critical step of integrating a registry or Chronic Disease Management System (CDMS) into your practice? Start with these must-reads from the California HealthCare Foundation (CHCF).

IT Tools for Chronic Disease Management: How Do They Measure Up?
This 2006 "invitational product review" compares chronic disease management systems (CDMS) products to electronic medical record (EMR) products, evaluating the strengths and weaknesses of 10 commonly-used products in terms of their effectiveness in chronic disease management.

While the EMRs were found to be the more technically advanced, scalable and generally sophisticated of the two types of tools, the CDMSs offered more advanced built-in evidence-based care plans and protocols, and capabilities for physicians to tailor treatment plans for patients. As well as more concise, useful reports specifically for chronic disease management. The CDMSs were also found to be easier to modify and easier to use. In addition, the CDMS required a much smaller investment of time, effort and money on a per-physician basis.

Of particular value in this report are the cost breakouts by organizational size and the section entitled "How Some Providers Use CDMSs", which summarizes onto one page the actual "in-practice" uses of disease registries.

Chronic Disease Registries: A Product Review
This CHCF report, prepared by NAS Consulting Services, helps physicians, medical groups, and other organizations considering the purchase or adoption of an electronic registry application by providing an overview of stand-alone electronic registry products that were publicly and commercially available as of May 2004. Sixteen products are described in detail and important decision criteria are outlined to help providers choose the most appropriate product. The report also helps them narrow their choices and identify the best options by offering details on functionality strengths, weaknesses, and cost.

Using Computerized Registries in Chronic Disease Care
Concluding that a registry is more affordable and speedier to deploy than an electronic medical record (EMR) system and is a practical tool for improving patient management, this CHCF report is intended to help physicians, clinics, and medical groups conduct their own assessments of these tools by offering practical information, including:

• Definitions, functions, and types of registries
• How to choose between a registry and an EMR
• Cost and workflow redesign considerations
• Examples of registries in use at the point of care and for population reporting

Are you ready to select the best software for your needs? Improving Chronic Illness Care (ICIC) offers a Registry Evaluation Form that will help to guide and structure your practice's evaluation of the available software, prior to making a purchase or implementation decision.

Download the Registry Evaluation Form Microsoft Word document.

Registries are just one care management process in the Chronic Care Model. Find out more about the latest developments in chronic care management and the Chronic Care Model.
The Improving Chronic Illness Care program is perhaps the best source for complete information on the Chronic Care Model and the evidence that support it. The program's Web site offers numerous useful tools and resources for providers and administrators seeking to implement CCM-based changes in their organizations. The Improving Chronic Illness Care program is supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by Group Health's MacColl Institute for Healthcare Innovation. ICIC resources of note include:

Tackling the Chronic Care Crisis CD-ROM
Improving Chronic Illness Care (ICIC) has released a new CD-ROM which summarizes the evidence in support of the Chronic Care Model and includes a 45-minute talk by its creator, Dr. Ed Wagner

The Planned Care Visit Video
Designed as a practical aid for clinicians, this VHS video follows a planned care visit in a typical office setting. This video is a great educational tool for (medical teams). A facilitator discussion guide and diagram of the Model is included, and subtitles highlighting key concepts pop up throughout.


New to these concepts? You may also be interested in these two influential papers by the originator of the Chronic Care Model:

Wagner EH.
Chronic disease management: what will it take to improve care for chronic illness?
Eff Clin Pract. 1998;1:2-4

Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A.
Improving chronic illness care: translating evidence into action.
Health Aff (Millwood). 2001 Nov-Dec;20(6):64-78.


TransforMED recommends you utilize these quality improvement tools and programs available at the AAFP's Web site:

Measuring, Evaluating and Translating Research Into Care (METRIC) is an online practice improvement program that allows you to earn CME credit while improving patient care.

Practice Enhancement Forum
Practice Enhancement Forum (PEF) is a hands-on quality improvement "weekend workshop" program for AAFP members that emphasizes the chronic care model. Offered at the state level, the program features a 2-day CME course and coaching to help practices implement the changes they've identified. Apply now for upcoming sessions.

Do you need experienced, effective help to become a Patient-Centered Medical Home?

TransforMED works closely with your practice to target, plan and implement the improvements your practice and care team need to achieve Medical Home designation.

Click here to send an inquiry to TransforMED



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